Saturday, October 21, 2006

they

Two months ago, after taking assorted extended family members to a Down syndrome association dinner and dance, in hopes that seeing people with Down syndrome will start to change old perceptions and stereotypes:

My sister-in-law: They sure are short, and they sure like to dance, huh?

Me: (sound of me knocking my head against the table) AAAAAAAAAAAAAAHH

A conversation I had with my husband’s stepmother just last week:

Me: Aaron goes to his neighbourhood preschool. The government gives us funding for a Developmental Specialist to go with him and help him if he needs it.

Stepmother-in-law: Well, if all of them go to regular schools, there isn’t going to be enough room in the classroom for all those kids and their aides.

Me: What?!?

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Stepmother-in-law: And all of them are going to take attention away from the normal kids.

Me: (still in shock, but trying to be rationale) Well, studies have shown that typical kids learn a lot from children with disabilities.

Husband: (hates conflict, but chimes in) My business partner has a son with autism who is in grade one. What they have actually done is surround him with a group of kids who help teach him in the classroom. If you actually do something by teaching, you learn a lot more than just sitting passively and listening to a teacher.

Stepmother-in-law: I think they should be in special schools so they have special teachers help them.

Me: I want Aaron to go to the same school as his siblings. Kids with disabilities do not just take, take, take – they give back, too!

Me: (continuing, starting to lose my patience, but trying to express my point of view) We want Aaron to have choice in his life so he can live independently if he chooses to.

Stepmother-in-law: I think they should stay in institutions. They closed down the institutions and now they are all on the streets causing trouble. Look at East Hastings! (A notorious homeless and drug haven in Vancouver).

Me: (unsuccessfully suppressing my rage) So you are saying that we should lock up and segregate all the people you feel uncomfortable with? How about people in wheelchairs? Should we go back to segregating black people while we are at it?

Husband: Um, Emily, I think your ideas are not very progressive or open minded.

Stepmother-in-law: I just want you to explain your justification for your decisions about Aaron.

Me: (I lose it. Now shouting) I DON’T HAVE TO EXPLAIN ANYTHING TO YOU! MY SON DESERVES THE SAME HUMAN RIGHTS AS ANYBODY ELSE! HE WILL END UP IN A SEGREGATED SCHOOL OR A GROUP HOME OVER MY DEAD BODY.

Me: Storms out of the room. Rest of the visit with stepmother in-law goes as poorly as you can imagine.

Clearly I am not going to change this woman's attitude. But how many others are lurking out in society that feel our children are a burden, and not a gift?